This is the primary source for all things VCP Disease related. CureVCP Disease Inc. is working hard to fight to find a cure by coordinating with the medical community, VCP Patients, and donors.
This is a fantastic resource for getting information on mobility solutions for those with current or future disabilities.
This is not easy to think about or discuss but I have to. I had no control in how I came into this world. I am working to maintain control of how I live in this world, and I will fight for my right to leave this world on my own terms.
Compassion & Choices works across the nation in communities, state legislatures, Congress, courts and medical settings to improves care, expand options and empower everyone to chart their own end-of-life journey.
Rare Disease Legislative Advocates (RDLA) staff organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff to work with and educate Congress on issues important to the Rare Disease community.
More to come!